Growing Connections: A Peer-to-Peer Community for Families with Growth Hormone Deficiency

Navigating a rare disease diagnosis can feel isolating, especially for families of children newly diagnosed with Growth Hormone Deficiency (GHD). At Rarity Health, we recognized the need for a supportive, educational, and community-driven platform where families can connect, share experiences, and access the resources they need.

The Collaboration

In a collaborative effort, Rarity Health, Pfizer, and the MAGIC Foundation launched the Growing Connections initiative to build a supportive community through storytelling for families facing Growth Hormone Deficiency (GHD). This initiative fosters connection, education, and empowerment by bringing together real experiences from families navigating this journey.

The Challenge

Families affected by GHD often struggle to find relatable, real-life information, and peer support. Without a strong community, parents and caregivers can feel overwhelmed and disconnected.

Our Approach

We created Growing Connections, a peer-to-peer platform designed to:

    • Provide a space for families to share personal experiences and support one another.
    • Offer educational resources tailored to newly diagnosed families.
    • Foster a sense of community through real-life stories and engagement opportunities.

The Impact

    • 76.7% increase in site traffic due to a strategic social media push.
    • Multiple new family connections and peer engagements, strengthening the GHD support network.
    • Winner of the Global Partnering for Patients Program, recognizing its impact on community-building.

Through Growing Connections, we didn’t just create a program—we united a community. By empowering families with knowledge and connection, we help them navigate the challenges of GHD with confidence.